|
Alzheimer's disease touches the
lives of millions of Americans. Today, some 4.5 million Americans
suffer from Alzheimer's, and 1 in 10 families have a loved one
afflicted with it. With no cure in sight, it is important for
families to arm themselves with information about this devastating
disease.
* Alzheimer's
disease begins slowly.
Like a stroke, Alzheimer's kills
brain cells. Unlike a stroke, however, Alzheimer's does not strike
suddenly. And, its effects are more far-ranging. Experts like
to say that Alzheimer's has an insidious onset. This means simply
that the disease starts slowly and unfolds very gradually. So
gradually, in fact, that the person who has Alzheimer's may not
realize that anything is wrong until a great deal of brain tissue
has been destroyed.
* Early symptoms
reflect what is happening inside the brain.
Alzheimer's disease attacks tissue
deep within the brain and spreads out to include all those regions
associated with complex thinking and learning; those regions
of the brain that make us uniquely human. As the path of destruction
widens, individuals who have Alzheimer's will eventually notice
that their thinking skills are deteriorating. More often than
not, they will notice that their memory is failing. But, it is
not just a series of senior moments. Individuals stricken by
Alzheimer's will have more than a little difficulty finding the
right words to express their thoughts and feeling. They may forget
the names of familiar places and long-term acquaintances. They
are likely to forget long standing appointments. To compensate
for these everyday losses, they may withdraw from friends and
avoid social gatherings. Their homes may become littered with
notes and other reminders as they struggle to overcome their
memory losses.
* Alzheimer's
disease affects personality and behavior.
Interestingly, even as problems
accumulate, many individuals will actively deny their difficulties.
Denial is a common way of coping in the earliest stages of Alzheimer's.
It is a defense mechanism that helps to preserve a sense of self-worth,
which becomes increasingly fragile as thinking skills fail. Unfortunately,
denial does not 'work' forever or for everyone. When denial no
longer works, some individuals sink into depression. Others may
react with angry outbursts, even rage, in the face of everyday
frustrations. It is especially common for individuals afflicted
with Alzheimer's to develop a kind of apathy. They lose interest
in those things that used to bring them joy.
* Early signs
of Alzheimer's may go unrecognized by family members.
Families often engage in their
own form of denial when it comes to Alzheimer's in a loved one.
Significant memory problems in their loved one may be dismissed
as simply a part of getting old. As a result, family members
often overlook the earliest signs of mental deterioration. They
become concerned and seek outside help only after they begin
to notice the more obvious changes in behavior or personality.
By then, Alzheimer's has probably progressed to the point where
their loved one can no longer live independently.
* Families must
be prepared for what is going to happen.
Whenever the diagnosis of Alzheimer's
is finally made, it is important for family members to understand
that this is not a disease that can be cured or reversed. The
fact is, individuals who have Alzheimer's will spiral downward
toward total care and, ultimately, death. It may take years,
but individuals who have Alzheimer's will eventually lose everything
that defines their personhood. Among other things, their ability
to communicate will continue to decline. They will lose the ability
to dress and groom themselves. They will need assistance using
the toilet. They may begin to wander and to experience hallucinations.
In the final stages of the disease, individuals afflicted with
Alzheimer's will be unable to recognize a spouse or a child.
Motor skills will decline so much that they will be unable to
walk or to feed themselves. They will lose all control of bowel
and bladder. Eventually, all body systems will shut down.
* Families must
be willing to reach out for help.
Families need to think carefully
about the amount of assistance they are willing and able to provide.
Affection for the afflicted individual, as well as a sense of
obligation, can initially blind family members to the harsh realities
of caring for their loved one. Families must understand that
the kind of care required will become more and more demanding.
Worse, they will have to watch as the deterioration takes place.
Among family caregivers, stress reactions can be quite severe
and depression is very common. To cope, family caregivers must
seek help from their larger community. The local Alzheimer's
Association should be their first stop. It is the best single
resource available. The local Alzheimer's Association can direct
families to a variety of services and assistance. For example,
many communities have respite programs to give families a short
break from care giving. Adult daycare also may be available to
provide care during the day while family caregivers continue
with their regular jobs. Often times, special support groups
are available to help caregivers deal with the depression and
other negative emotions that can develop over time. In any case,
families of persons afflicted with Alzheimer's disease do not
have to go it alone. Help is available.
Douglas Hardwick, Ph.D., holds
a doctorate in psychology from the University of Virginia. He
has extensive interests in aging and holistic health issues.
He recently developed a holistic health information hub http://www.holisticwebworks.com
|